We welcome you to the TBnet monthly webinar on Thursday 31st of March @16 CET!
In this webinar we will discuss the involvement of TB survivors in the research process. We will start by hearing from three experts about their own experiences of patient and public research involvement and end with an interactive discussion. Join us on Zoom!
Time: Thursday 31st of March @16 CET
Meeting ID: 946 0238 4316 Passcode: 860273
Speakers:
Dr. Jonathan Stillo is a medical anthropologist and an Assistant Professor who teaches Anthropology and Public Health at Wayne State University in Detroit, Michigan.
His work and passion focuses on using anthropological and global health approaches to reduce human suffering in the world. He has received research grants from the US National Science Foundation, The US Department of State, Fulbright-Hays, and The Social Science Research Council, among others. Since 2006, Jonathan has been researching tuberculosis (TB) in Romania—including living at a Romanian TB sanatorium for several months and interviewing hundreds of patients over the course of more than five years living in Romania. His research focuses on the social, economic and structural aspects of TB, particularly antibiotic resistant varieties. Jonathan has served as an International Expert on the World Health Organization and consulted for The European Centre for Disease Prevention and Control and the Global Fund. He is the elected Co-Chair of the TB Europe Coalition and a member of the STOP TB USA Coordinating Board. In 2019, he became the coordinator of the World Health Organization's European Office's working group on Patient Centered Tuberculosis Care. For more information about Jonathan's work click here: https://clasprofiles.wayne.edu/profile/gc4943
Oxana Rucsineanu is Executive Director at the SMIT Association - a TB advocacy and support organisation in the Republic of Moldova and board member of The TB Europe Coalition (TBEC) - a regional advocacy network of civil society organisations and individuals working to strengthen the role of civil society within the regional response to tuberculosis (TB).
Becoming a TB activist, after having gone through the personal experience of drug-resistant tuberculosis, Oxana is now an active member of the National Platforms of TB NGOs and KAP (Key Affected Population) Committee, CCM, and National Committee of Experts in the country. Internationally, Oxana is engaged in TBEC, CABs STREAM, GCTA, TB CAB, TB People, and RCC-THV and SEE-RCN networks. Since 2011, Oxana has coordinated several projects focusing on the rights of TB communities, comprehensive approaches to ACF, TB care, and CE in R&D. Oxana is strongly committed to advocating for constructive partnerships and efficient TB care as well as to making TB voices heard in the global TB response.
Dr Lorenzo Guglielmetti is a Medical Doctor and infectious Diseases specialist, holding a MSc and PhD in Epidemiology.
He is currently co-Principal Investigator of two MSF-sponsored Phase III MDR-TB clinical trials and affiliated to the French National Reference Center for Mycobacteria in Paris, France. His main research goal is improving the treatment of drug-resistant tuberculosis by studying new, shorter, safe and effective regimens. Dr Guglielmetti has been part of the Steering Committee of TBnet since 2014.
Chair:
Dr Jessica Potter MBBCh PhD, Advocacy Lead TBnet.
Jess is a consultant in respiratory medicine and clinical lead for tuberculosis working in London. Jess also campaigns to raise awareness about TB and migrants' rights. She has spoken about these issues on radio and television and written in the national press.
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